| Location | Luton, Bedfordshire |
| Age | 4 months |
| Date of Birth | 4/2005 |
| Date of Death | 8/2005 |
| Visitors | 2,362 since 04/04/2006 |
| Creator |
Ewan was born on 13th April 2005 weighing a healthy 7lbs 15ozs. Apart from a scar on both hands he looked perfectly healthy and he had a high Agpar score. He had a healthy appetite too!! By 3 weeks he was 11lbs.
However, the dermatologist at the hospital feared that Ewan might be suffering from a very rare skin blistering condition called Epidermolysis Bullosa, or EB. Specialists from Great Ormond Street came to the hospital when he was a week old and took a sample of skin for a biopsy in order to obtain a diagnosis. Blood samples were taken from me and my husband. Ewan was the perfect baby, rarely crying , very alert and inquisitive.
However, we noticed that his voice became hoarse and he seemed to be in pain. The blisters were forming internally and he had to have constant pain relief. He had blisters inside his mouth which made feeding difficult. We were told that Ewan had the most lethal form of this arer disease, and that he would be lucky to survive until 4 months.
He still managed to smile and apart from when his dressings needed changing, he was happy and alert. A real daddy's boy in fact. He knew how to get us all running after him and tending to him all the time.
His favourite toys were his black and white book, his musical nursery rhyme book, his helicopter mobile, his butterfly and fish mobiles and his talking bricks.
At 3 months he really liked watching TV, so we bought him his own special baby seat, which he loved! If we tried to take him out of his seat for bed, he would cry. We had ben told by the doctors and nurses that Ewan would gradually become malnourished because the blisters on his gut would stop him from absorbing nutrients from his food. This was hard to believe ,as he loved his milk.
But, sure enough, the weight started to decline , slowly at first, then we could see marked deteriorations. The medics refused to allow tubes, as his skin was too sensitive. There was no cure for this condition and it was deemed better to let him go.
We still lived in the vain hope that the researchers would find a miracle cure. It was not to be. On August the 17th my beautiful baby son passed away in his daddy's arms. He was only 4 months old.
----HAPPY NEW YEAR
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When tomorrow starts without me
And I'm not there to see;
If the sun should rise and find your eyes
All filled with tears for me;
I wish so much you wouldn't cry
The way you did today
While thinking of the many things
We didn't get to say.
I know how much you love me,
As much as I love you.
And each time that you think of me
I know you'll miss me too.
But when tomorrow starts without me
Please try to understand,
That an angel came and called my name
And took me by the hand.
If we could bring you back again,
For one more hour or day,
We’d express all our unspoken love;
We’d have countless things to say.
If we could bring you back again,
We’d say we treasured you,
And that your presence in our lives
Meant more than we ever knew.
If we could bring you back again,
To tell you what we should,
You’d know how much we miss you now,
And if we could, we would.
Our memories build a special bridge
When loved ones have to part.
To help us feel we're with them still
And soothe a grieving heart.
Our memories span the years we shared,
Preserving ties that bind.
They build a special bridge of love
And bring us peace of mind.
As New Year approaches
It seems harder this time of year
We miss you so much more
The only thing that gets us through
Are the memories of before
So here's a card just for you
To show how much we care
I know your waiting with the angels
One day I'll see you there.
Thoughts Today Memories Forever
Angela(Christopher-John Rowe)Mum
I would like to thank everyone for all the candles, tributes gifts and kind words they have left on Christopher’s website I appreciate every single one.
I would also like to wish you all A Happy New Year & my best wishes for 2009.
Angela X
Friday 2nd January
♥ 22ND NOVEMBER 2008 ♥
GOODNIGHT Angel xxx...
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Sending you lots of love ,
♥♥♥
Beautiful smile for a very special baby....
Baby Ewan
Your smile would melt a thousand hearts,fly free baby Ewan always~~~~~~
Love Louis's Mummyxxxxxxxxxxx
14TH NOVEMBER 2008
♥^♥MY BROKEN HEART.♥^♥
♥^♥My heart feels oh so empty,♥^♥
♥^♥Its shattered broke in two,♥^♥
♥^♥Theres nothing that can mend it,♥^♥
♥^♥As it broke when I lost you. ♥^♥
♥^♥So my heart will just stay broken, ♥^♥
♥^♥For all my living days,♥^♥
♥^♥I will always love and miss you,♥^♥
♥^♥In a hundred,million ways. ♥^♥
♥^♥JUDE.X♥^♥
sorry
i feel so sad after reading about beautiful ewan. i lost my little girl destiny aged 3 months, seven years ago, but i dont know if this is a comfort to you or not but destiny had heart problems and great ormand street hospital done two operarions on her tiny body but the second op was too much for her and she also slipped away. i am 100% sure that g.o.s. are the best. they would of done all they could but like i say to my self even too this day. god takes the best and leaves the rest. i do hope this helps ease your pain
3 years of pain, I miss you so much
My darling beautiful Ewan, 3 years ago today your pain ended. I am sorry that you suffered so much, EB is a horrific illness. I did everything possible to make your short life more bearable for you. I hope that life is better for you now; let me know that you are OK because I miss you so much and I cry for you every night, its horrible not having you here. You were the most beautiful son a mother could hope for and I know you would have been an amazing person. Granny says that you gave her so much happiness in your short life. I think that too but I still remember vividly your pain. I hope that has gone now. Let me know you are ok. Love you forever, and I look forward to seeing you again.
A BABY BOY IN A MILLION SENDING YOU ALL MY LOVE XXX
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Mummy misses you
My Darling Ewan, I miss you so much. Your room is exactly the same as it was when you left us, your lovely clothes are still there and your favourite toys. You will always be my special boy. xxxx
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